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All Things Angioedema – Learning about angioedema with Dr. Thomas Buttgereit

All Things Angioedema – Learning about angioedema with Dr. Thomas Buttgereit

ACARE, the Global Allergy and Asthma Excellence Network for Angioedema
Uitgebracht: 2025-04-08
© ACARE, the Global Allergy and Asthma Excellence Network for Angioedema
All Things Angioedema – Learning about angioedema with Dr. Thomas Buttgereit - QR Code
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36 afleveringen
Audio
Luister in Apple Podcasts
Gratis0%
36 afleveringen
Audio
Luister in Apple Podcasts
Uitgebracht: 2025-04-08
© ACARE, the Global Allergy and Asthma Excellence Network for Angioedema
Meest recente aflevering
Episode 36 – Mortality in HAE: The Silent Threat

Episode 36 – Mortality in HAE: The Silent Threat

Tijd: 19:08
Afspelen
In this episode, Thomas welcomes Dr. Fernanda Minafra, allergist and immunologist at the Federal University of Minas Gerais, Brazil, to discuss one of the most concerning aspects of hereditary angioedema (HAE): mortality. 
They discuss:
🔹 How often do HAE-related deaths occur? 
🔹 Why is undiagnosed HAE a major risk factor? 
🔹 What do global studies say about mortality rates? 
🔹 What can be done to reduce HAE deaths worldwide? 
Dr. Minafra shares insights from her research, including a systematic review on HAE-related deaths and a study on mortality rates in Brazil. She highlights the urgent need for better diagnosis, access to treatment, and public health policies to prevent avoidable deaths. 
Join us for this crucial discussion on why early diagnosis and proper treatment are key to saving lives. 
Key Learnings from the Episode 
HAE-related deaths are often caused by asphyxiation due to laryngeal angioedema. 
HAE mortality rates remain high in many parts of the world, especially in developing countries. 
A systematic review found that 1 in 20 HAE patients has died from asphyxia. 
Undiagnosed patients are at much higher risk of fatal outcomes. 
Many death certificates fail to properly identify HAE as the cause of death. 
HAE patients who die from asphyxiation typically lose 20 years of life expectancy. 
Access to diagnostic tests and effective treatments is essential for preventing deaths. 
Global collaboration through ACARE centers is needed to improve mortality data collection and patient outcomes. 
Do you have suggestions for future episodes? Please provide feedback and offer your suggestions for future topics and expert selection here.
Feedback form ATA: ⁠⁠https://forms.office.com/e/ZWxx3D4Cmr
Aflevering-ID: 1000702676499
GUID: 0b1cd6a0-c3c2-48bd-860b-4c97351ebbb8
Releasedatum: 8-4-2025 11:00:00

Beschrijving

Started by ACARE in 2023 within the ACARELevelUp program this podcast is an invaluable resource for health care professionals, and anyone interested in learning more about angioedema. Dr. Thomas Buttgereit, Head of the Study Center at Charité Berlin, discusses all forms of angioedema, their pathophysiology, burden and treatment strategies with experts from all over the world. All opinions expressed are those of the faculty. This content should not be taken as medical advice and is for informational purposes only. Learn more about ACARE here: https://acare-network.com/

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